Beth Young
(Aunt)
To
know John Carson was to love him. I remember the first time I saw him.
We were living in Blanding and I had come to Lehi for medical help for
my son Sydney who was not doing well. In those days the trip from Blanding
to Lehi was a long arduous one especially when traveling with three
small children. It was late and I was tired, but Barbara was there and
she wanted me to see "my little baby brother!" I tried to
talk her out of going to her home until the next morning, but Barbara
and her tears had a way of melting the hardest of hearts. I went to
see "my little baby brother." It was worth the effort. John
was a beautiful baby and my sister Blair was so proud of him. We had
a wonderful time comparing the wonderful feeling of being the mother
of sons. I had a little edge on her as I had three sons of my own.
As he grew John was a charming child. Maybe that is not the right
word to describe a boy, but it is an apt one. John, even at that early
age had spirit and presence that was unique to him. Looking back, he
was never a robust or active child, yet he made his presence known.
Everyone thought he was special. He continued to progress slowly but
he was always alert and cheerful, and no one suspected that his activities
were not exactly normal. He loved toy cars and trucks as most boys did
and when playing with them made all the appropriate noises. He played
with them though, while laying on his side and pushing them around.
It was our brother Evans who first alerted Blair that his actions
were not quite normal. Whenever he was sitting and tried to stand, he
had a way of climbing with his hand up his legs until he was erect,
then throwing his head back until he was upright. Blair and Ray and
all of us saw nothing wrong with this just thought it was John's little
habit. Evans who was a pre-med student suspected something was wrong.
I was with Blair when she took John to see Dr. Eddington. The doctor
watched John as he tried to get on his feet. He gave him a good going
over, and then left us alone in the room. It seemed like a long time
before he came back. He had a young doctor working with him, and the
two of them gave Blair their diagnosis. John had muscular dystrophy
- a rare disease where the muscle tone was not normal. They told her
there was little known about it and there was no cure for it. John would
get progressively weaker. The prognosis was that he would not live past
teenage. They showed us pictures of children in wheelchairs - who were
very obese. That last did not fit John as he had always been skinny.
Blair took the news calmly outwardly, but you could see her suffer
inwardly. I felt sorry for her, but I have never been one who could
express that sorrow to others. From that day on Blair and Ray made it
a life's work to do all they could for John. I don't think they or any
of us realized how serious it was, but as the years went by all could
see how devastating it was. Blair and Ray handled his growing up well.
They did all they could for him, but not to the extent of spoiling him.
There could have been the making of a spoiled pampered child, but this
wasn't the case. Maybe it was because John wasn't spoilable. His cheerful
disposition and sense of humor made him a joy to be around. When he
was small he couldn't do many of the things other boys did. He never
could ride a bicycle but as a small boy he had a tricycle. In the summer,
the town had a children's parade. Blair made a float for John to pull
behind his tricycle. She made a little cart and had one of Barbara's
dolls dressed as a "queen". He won a prize and was really
happy.
John learned to cope with his handicap.(I have never thought of John
as being handicapped.) He had so many fine qualities that made others
seem inadequate. He managed to make do with what he had. Others had
roller skates and he wanted some. When he got his he couldn't stand
on them so he put them on his feet, squatted down and propelled himself
with his hands. Soon all the other kids in the neighborhood were roller
skating sitting down. At school one time the children were acting as
animals in the zoo. That was no problem for John. "I'll be a spider,"
he said, and was the hit of the show. Blair was a master at creating
costumes.
As a child for a while he was always testing himself-trying to see
what he could do. He would challenge my boys to "rassle" (wrestle).
I did my best to see he wasn't embarrassed. If they were outside I'd
say, "Don't do that you're getting your clothes dirty." If
they were in the house, the answer was, "you can't do that in my
house, you'll break something." But he kept trying his strength,
and when he found his limitations it did not get him down. He just didn't
try any more. He learned to drive a car and got a license. He was in
heaven. One day he took the car out, and as he turned a corner he could
not control the car and drove on somebody's lawn. He came home, gave
his mother the keys and never tried it again--but if he felt bitter
and unhappy he kept it to himself.
He must have been about nine or ten when he found music. Blair and
Ray had moved from Lehi to Salt Lake. Blair found a music teacher who
liked to work with children---if the children liked to work. John came
to like music naturally. Both his mother and father played the piano.
John loved playing the piano and would practice without being forced.
The old music lady liked that and taught him not only the notes, but
music theory. He and his mother liked to play duets together. When my
son Bill went on a mission they played in his farewell program.
John liked school and was a good student. He was a favorite among
his schoolmates. The school house was an old two story building. When
they had fire drills all the larger boys wanted to be the ones to help
John down stairs. When he went to high school he chose East High as
it had an elevator. On day he came early, and when questioned he said
he couldn't open some of the doors. Again he realized his limitation
but it didn't stop his education. The school sent tutors to his home
and he graduated from high school. He attended the University of Utah
for several years. Again his physical limitations caused him to quit,
but he never stopped learning.
He had many hobbies. Ray made him a desk in his room where he could
make things. He worked with plastic, silver and wood. One of my prized
decorations is one of his wood pictures. He made model cars to race,
and this was a hobby his father could enjoy. They went to races all
over the city. Ray would go any time or place to take John.
John had many friends who loved to be with him. His birthday was Jan.
1, and every New Years eve his friends gathered at his home for a night
of good eats and cards. Even when these boys might have been dating
they came to John's birthday party.
As his body became weaker, his spirit seemed to become stronger. When
his mother died he seemed to become stronger trying to comfort his father.
The two had a rare relationship.
John loved his brother and sisters. There was always some sibling
rivalry between Barbara and John, but it was more prevalent in Barbara,
and as she grew older she realized how important John was to her. He
and Lynn loved each other and took great satisfaction in each others
accomplishment. The twins, much younger than he, was a source of pleasure
to him. When they, his siblings, married and had children those children
were a constant delight to him. It was common to see John in his work
desk with a nephew or niece on his lap.
The last few years of his life was spent teaching disadvantaged children
about computers. This was a volunteer project and the parents and children
loved him. Ray let us read some of the letters these parents wrote when
John died. Some were so illiterate you could hardly make them out, but
you could read the love in them.
John was a rare and special person, with traits, talents and attributes
not found in everyone. There is a passage in the bible, "He builded
better than he know." Blair and Ray "builded better than they
knew." As I said at the beginning...to know John was to love him--and
I knew John.
As a tribute to my aunt, I'd like to say that we could well stop here
and let her tribute of John suffice----many of the entries later will
have repetitions of this one, but all are written by others who knew
and loved John too....each one well worth reading.
My next caution would be this: Just as you would court a new friend
a little at a time, that is how I think the reading of this compilation
ought to be .....read little at a time. Too much of a good thing (even
John Carson) can be too much all in one sitting.